Thank you to all who have expressed concern for us and for our baby Lily. I have really appreciated all those who have reached out to us in any form. Your prayers are working for us. Keep it up! =)
We got some good news about a week ago. The results from my amniocenteses came back clear. This just means that there are no additional problems. We feel very grateful. Many of the problems they were testing for had high mortality rates. So we feel much more optimistic about Lily's future although much is still very unknown.
Right now we are just working on follow-up testing. We are also looking into participating in a study where doctors on the mainland would do surgery on the baby in-utero. We are really excited about the possibility, knowing that this would not be a cure, but a possible help for more mobility for Lily. So we will keep you updated on that.
Otherwise life is going on and thank goodness we have our three beautiful children keeping us busy and happy. Anna has started school (1st grade), Eryn continues to stay home with me learning new things every day, and Joseph keeps us laughing and smiling with all of his funny ways.
I will post new pics of the kids soonish. Just wanted to post a little update for those anxious to know more. Love to all of you!
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4 comments:
Love you guys. It's always good to hear some good news.
hey...anne told me about this and i came over to read what's going on. i'm so sorry and you're in our prayers too. if that surgery happens to be at stanford, let us know what we can do to help (a place to stay at least!!) since we're only 20 minutes from there.
We can't stop thinking about you and are glad that there's some good news. All of my family is keeping you in our prayers as well. We sure love you all!
So glad to hear about the good news! I've been wondering how the testing went, but didn't really want to bring it up in case it was too much... we sure love you guys.
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