Day #255 - Anna and Spina Bifida Clinic

I took Anna with me to Lily's Spina Bifida Clinic appointment today. I thought it would be good for her to see what Clinic is like. This is an all morning hospital visit where Lily is seen by a team of experts. Lily was pretty antsy while I talked with each specialist (who wouldn't be after three hours??). So it was really nice to have Anna there. She entertained Lily and followed her up and down the hall between dr. visits. After the long morning, I treated Anna to lunch at the hospital cafeteria afterward (where we met up with one of our favorite SB friends, Jaylee).

A funny thing happened while we were getting our food in the cafeteria. A woman watched Anna and Lily for a while, then she approached them. She commented on how cute Lily was in her wheelchair and then she told Anna what a good big sister she was and handed her a handful of change. Ha ha ha. I totally agree. Anna is a great big sister. The fist full of quarters just cracked me up, though. :)

Update on Lily: Lily is doing very well. All of her specialists were pretty positive about her progress. The concerns right now are:

- getting her on a good bowel program so that we can get her to poop once a day at the same time and keep her from having accidents (I am not too excited about working on this)

- her left foot is turning in pretty bad. We are considering re-casting it in the future.

- Lily's weight gain is really slow-going. We are still trying to get help with her eating issues.

Outside of these issues, Lily is doing great! Physically she is strong and very mobile. Her shunt appears to be working properly and her bladder is in good shape at this point. No high pressures, no reflux, no serious kidney issues so far. I do not take these non-issues for granted! I know Lily is lucky not to have too many complications at this time.